Clwyd West Assembly Member Darren Millar has welcomed news that people in Conwy and Denbighshire living with the muscle condition myasthenia are to be given more support thanks to funding from the National Lottery.
Myaware North Wales were awarded 9,975 of National Lottery funding in December after successfully applying to the Big Lottery Fund.
The project will provide support for people living with the condition, and their families. The grant will fund counselling courses, benefits advice, outreach support groups, regional conference transport, befriending events, clinical packs, and a volunteer event.
“Myaware support people with myasthenia and their families and while their North Wales group is based in Rhyl, they will also be working in Clwyd West. I am therefore very pleased to hear that they are to receive this funding to enable them to continue to provide these essential services for people living with this condition and their families.
“I would like to congratulate Myaware North Wales on their successful application and wish them the best of luck moving forward.”
Myasthenia means muscle weakness. This is confined to the voluntary muscles, muscles whose action is normally controlled by an individual's will such as the arm and leg muscles, and does not affect either the autonomic system or sensation. People with myasthenia have characteristically fatigable muscles and the harder people with myasthenia try, the weaker they get. They are often strongest in the mornings and get weaker during the day.
From the 30th of January the Big Lottery Fund will be known under the new name of The National Lottery Community Fund. This change is to clearly reflect the work that they do, who they do it for and to visibly demonstrate the impact of National Lottery funding in supporting Welsh communities to thrive.